Help a hopeful writer out?

Hello fine friends!

My name is Georgia and I’ve just started writing about alopecia on My Invisible Life, a website dedicated to the stories of people with medical conditions which are invisible or have low public awareness. I’m doing this on behalf of the Australia Alopecia Areata Foundation, where I’ve been a Youth Ambassador for several years now.

I’m hoping to get some feed back about what other alopecian’s would like to see written about. I’d love to hear from anyone about just about anything, but especially things they wish they could educate non-alopecians about. :) You can see my first post here.

Thanks :)

sytycd11:

Franchesca Bass Audition

first-day-ofmy-life:

so im writing a paper about my alopecia.

and everything i say sounds corny as SHIT.

just wanna be like ‘im bald get over it bye’

doyoudare-hair:

Today I removed my make up and smiled because I feel beautiful even if I only have half my eyelashes!

love it. 

nefrayunox:

hair update may 2013 - may 2014 im super bald and if this happened to me last yr I’d probably curl up into a ball and never leave my house but I think im doin ok with it. being bald still sux but ive had some days where I dont mind it so much most days I think I look cute w/out my wig and that’s super important 2 me learning to love urself takes so long tho jeez

real strugglex. and your lipstick is fab. rock it.

nefrayunox:

hair update may 2013 - may 2014
im super bald and if this happened to me last yr I’d probably curl up into a ball and never leave my house but I think im doin ok with it. being bald still sux but ive had some days where I dont mind it so much most days I think I look cute w/out my wig and that’s super important 2 me
learning to love urself takes so long tho jeez

real strugglex. and your lipstick is fab. rock it.

peaceand-things:

Tried to do the bow scarf today! It turned out pretty good :) 

LOVE your scarf! Also, how did you learn to tie it like that??

peaceand-things:

Tried to do the bow scarf today! It turned out pretty good :) 

LOVE your scarf! Also, how did you learn to tie it like that??

Hello lovely people, I want to let you all know that this blog will be going on hiatus for a while. I need to focus on some other things in my life right now, so I probably won’t be posting. Take care y’all, see ya round the malt shop!

Anonymous said: I am so sorry for bothering you, but I seem to be a little bit lost at the moment, and could really use some guidance, so I hope it's okay, if I ask your lovely self!:-) I also have alopecia but I wear a wig, and the thing is, I havn't really told any of my classmates yet, which has absolutely nothing to to with them, they're so lovely, it's just that I don't know if I am ready yet. But I just feel so guilty because I feel like I am lying to them, because sometimes they will ask me (...)

ANON continued:  (…) how I dye my hair (for example:-) ) which is so sweet of them to ask, but I just feel terrible, because then I will ‘panic’ and answer the question as if it was my actual hair, because I just don’t know if I am ready yet. I just feel so horrible and silly, because it has never been my intention to lie to them or anything like that, and it just makes me feel like a horrible, horrible person, and I just don’t know what to do anymore!:-( I am so sorry, this is so long and silly, I just came across this/your lovely, lovely page and I just had to write to you! I am so sorry about that! But thank you so much for creating this, you have no idea how much it means!<3 You are absolutely lovely, brave and beautiful!<3 And that goes for all fellow alopecians; you are all SO brave and SO incredibly beautiful, inside and out!! I wish I was just half as brave and beautiful as all of you! I love you all!<3 (sorry about my bad english by the way, hih but thanks a ton for your time!<3)

———————

Hey anon,

I think there are a couple of important things here:
1- Becoming comfortable being public about having alopecia can be a long and hard process, and it looks different for each person. You’re not comfortable with people knowing you wear a wig right now. And that’s totally okay. Maybe you will in the future, and maybe you won’t, but this is where you are right now, and you need to honor that. 
2- You don’t owe an explanation to anybody.  You don’t have to explain your hair situation to anyone if you’re not comfortable doing that.  Not being completely honest doesn’t make you a bad person-  it means that you’re doing what you need to do to be comfortable.
Good luck!

ed3re:

words cannot describe how happy i feel right now.

full head of hair
new home with the boyf
2 years & 16 days self harm free

wow. i am proud of myself.

mdmaeffect:

my hair looked amazing

mdmaeffect:

my hair looked amazing